On having a health information need
During the wee hours of the morning on Tuesday, my partner and I were awakened by my beloved elderly border collie having a seizure on the living room floor. Having never seen a seizure before, I was aghast to see Zeke foaming at the mouth, eyes glazed, feet paddling away rapidly as if he were running full tilt. The seizure was prolonged, lasting at least five minutes after we woke up, plus, we don't know how long Zeke had been seizing before we woke up. Once the seizure itself subsided, Zeke was compelled to keep moving, unable to stop trotting around for the better part of two hours. A couple of calls to the emergency vet revealed that this is normal behavior for dogs post-seizures, but we still felt horrible and helpless, unable to do anything to assist Zeke other than try to reassure him. Eventually and gradually, Zeke was freed from compulsion to move and the three of us were able to get a few hours rest. He seemed to suffer no permanent effects from the seizure and the aftermath, only exhaustion.
When we visited our regular vet on Tuesday, we found out that seizures over two minutes in duration are considered to be severe in dogs and can cause significant brain damage. The blood work indicated no toxins in his system and nothing unusual except some markers that Zeke had indeed had a seizure. Because of the severity and duration of the seizure, the doctor immediately prescribed phenobarbital as a preventive measure against recurrences. She warned us of side effects, such as excessive thirst and especially balance, gait and disorientation problems, but said these would lessen after a week or two. True to the vet's prediction, our Zeke has indeed been extremely wobbly since Tuesday and somewhat disoriented. Our valiant, hyper, Frisbee dog was reduced to stumbling and falling, struggling to stand upright on the linoleum kitchen floor.
In the wake of this health crisis in our household, did I use my spiffy librarian skillz to seek additional information to address my concerns about the side effects of the medication? Did I search PubMed, Google Scholar or any reference materials to learn more about phenobarbital or seizures in dogs? Did I consult Healthypet.com from the AAHA for more information or consult my colleagues at the Veterinary Medical Library for assistance? Did call the vet? No. I talked to friends and co-workers, talked to my partner, and posted on twitter and Facebook. I talked to the dog, who waggled and licked my nose. In other words, I fretted and sought social support, but took no steps to acquire additional information to help me understand what was happening.
This morning, I woke up, drank a cup of coffee and said to myself, "Self, I think the Merck Veterinary Manual is available online." I consulted the Merck, searched PubMed, looked at the AAHA site and did a Google Scholar search. All of the sources reiterated exactly what the vet originally said about the side effects of phenobarbital subsiding after two weeks. Even so, I feel much better with additional information at hand.
I spend every day helping other people find information. I know that finding consumer health information can be helpful in coming to terms with a new diagnosis, yet, when a crisis presented itself in my life, I froze like a stunned bunny. What if, instead of a dog, the seizure had happened to my partner or elderly parent? What if I didn't understand English very well? What if I had no computer or searching skills? As librarians, we are trained to treat every information need with respect and all due seriousness, but, frankly, there are days when this is easier said than done. The reality is, however, that when people are scared and distressed, they just aren't always very rational. So, the next time Definitions Guy calls five times for the same definitions he requested last week or someone asks if they will get burned if their flame-retardant mattress catches on fire or a freaked out student approaches the desk for help on the verge of tears, I hope I will remember this week with Zeke and treat their questions and concerns with consideration, patience and attention.
